You'll always be my Olivpurr, Mr. Olives. I love you so so much, and already miss you terribly. My heart is broken and will forever have your tiny paw print on it. Always and forever. I can't believe you are gone.
Tuesday, December 30, 2014
Oliver
IToday mom's baby boy, my cat-brother, and Church's best friend passed away very suddenly and unexpectedly.
Sunday, December 28, 2014
Next three weeks
When your body is on antibiotics for a extended period of time, your body becomes resistant. This is why it's common in treating lyme to keep changing the antibiotics used. When you're on antibiotics, it is important to detox; the medications kill of the lyme spirochetes, that build up of the dead needs to be released for your body. When your body doesn't release these, they stay in your body causing your body to become extremely toxic. An overload of toxins in your body can cause many complications. One toxicity in the body is neurotoxins. Neurotoxins are substances that are poisonous and destructive to nerve tissue. Neurotoxin exposure can cause many complications such as intellectual disability, persistent memory impairments, epilepsy, dementia, neuropathy, and myopathy.
The combination of the cognative issues with the inibility to detox and the body becoming toxic results in complications to treat lyme. Earlier in 2014 my toxin level was tested, I had three times the normal amount of toxins, meaning my body was extremely toxic. We tried several detox methods but my body will just not detox.
Halfway through 2014 we (my doctor and I) started to notice significant resistant to antibiotics. We tried several different types and all the results were the same; my body's wouldn't take anything.
In Septemeber 2014 we determined that my body was giving up. We decided to stop all medications at this point. At the end of September I was bit by a second tick; this time on the west coast giving me the west coast strain of Lyme Disease (lyme disease is different depending on the region). Immediately following this bite and bullseye rash I visited my doctor. During this visit he told me that the neurotoxins are making my depression much worse and my body can not deal with the antibiotics at this moment. He said it would cause more damage to start them up at the time, than the second tick bite (which was already showing symptoms). At this time we decided to continue staying off antibiotics.
Since my visit in September, I've had 4 ohone appointments with my doctor. In October he asked me how I was feeling and I told him my symptoms were overwhelming and I thought maybe I should try antibiotics again. After a lengthy conversation he told me the signs are pointing to that starting medications against would push me over the edge. Since this appointment, because of my severe depression and the neurotoxins altering my brain, he alerted me that if I had any sign of hurting myself or others to call him immediately. I asked him again about starting antibiotics, he told me that he had a patient just like me who thought they could handle the antibiotics, and he believed her. But once she started them again, because she was still having resistance to them, it was too devastating for her not to get results plus the over flow of the neurotoxins causing her altered mind it pushed her to kill herself. My doctor was afraid of the same for me.
At this appointment he mentioned to me to come to California for a month to try a "last step" detox program called the Patricia K (PK) protocol. Before I did that though he wanted to try a couple more extreme detox attempts at home, which ended up having no help for me.
About my depression he changed my antidepressant several times since October. The last one he put me on was one of the most powerful available, and when that didn't work to help me, he added a second to go along with it. These did not help.
My depression is extremely severe and no longer manageable. We are at the last most extreme attempt to right it, and that step is the Ketamine treatment. This treatment is used occasionally on suicidal people admitted to the hospital. Recent studies have shown that it can turn depression off almost instantly. This is my last resort.
January 4th I am traveling to California and will be there for 2 weeks. Each day I will be getting IV componates of the PK protocol to help me finally detox. Once my body has actually detoxed I should be able to start medications again. Towards the end of the two weeks I go in for an IV of Ketamine to help my depression. Following this treatment it should bring me back to a level where antidepressants start to work again.
Most people don't understand 'severe depression'. Commonly depressed people see their depression as severe but it is not. There is a level of depression where you uncontrollably tear at your skin, have no ability to function or control your outward reactions, feeling the necessary of admitting yourseld to a mental health facility or hospital, and absolutely hate everything about yourself and who you are to the point of making yourself sick. This is where I am. Still in this stage of depression, you can still try to hide it, which I believe I have. I am barely even a step away from the stage of hurting myself or hurting others, and that is the stage we will hopefully completely miss thanks to the Ketamine treatment.
I said before that I really need to be back on medication; its a catch 22 though, damned if I do, damned if I don't. The pain has gotten so bad, I have a really hard time walking and I've had to get a cane. My joints have a difficult time moving. There's something going on with my right foot where I can't even move it at all without shooting sharp pains that nearly knock me down. I need medication so bad, I really hope this stuff works so I can get back into it.
I've lost majority of my hope. But I still have this tiny little bit that this will work. If it doesn't, who knows?? We will cross that bridge if it ever comes up. I still have some hope and I still see myself as a strong person.
With all this said, if one more person complains about a stuffy nose being the death of them I'm going to flip my shit. Which is why I've blocked from seeing practically everyone on my facebooks so I don't see that stuff anymore, I've also been limiting my facebook time. I will not be on facebook from now until all the treatment is done. Keep in mind I do have apps connected to facebook so you may see pictures posted. I'm done looking at facebook, as well as basically all social interactions (they all drive me to tears) until after January 16th. If you wish to contact me between now and then you may text (do not get upset if I don't answer) or email. I'm not in the correct state of mind to deal with anything.
Wish me luck in this treatment working.
Saturday, December 27, 2014
Van Gogh - My Collection
The following is a list of Van Gogh paintings I've seen.
1. Undergrowth with Two Figures
Painted June 1890
2. Lilacs
Painted Summer 1887
Saw in 2010 in Los Angeles, CA at the Armand Hammer Museum of Art
3. The Parsonage Garden at Nuenun in the Snow
Painted in January 1885
Saw in 2010 in Los Angeles, CA at the Armand Hammer Museum of Art
4. The Sower: Outskirts of Arles in the Background
Painted in September 1888
Saw in 2010 in Los Angeles, CA at the Armand Hammer Museum of Art
5. Trees in the Garden of Saint-Paul Hospital
Painted in October 1889
Saw in 2010 in Los Angeles, CA at the Armand Hammer Museum of Art
6. The Baby Marcelle Roulin
Painted in December 1888
Saw in Washington, DC on December 26th, 2014 at the National Gallery of Art
7. Green Wheat Fields
Painted in May 1890
Saw in Washington, DC on December 26th, 2014 at the National Gallery of Art
8. La Mousmé, Sitting
Painted in July 1888
Saw in Washington, DC on December 26th, 2014 at the National Gallery of Art
9. Self-Portrait
Painted in August 1889
Saw in Washington, DC on December 26th, 2014 at the National Gallery of Art
10. Still Life: Vase with Roses
Painted in May 1890
Saw in Washington, DC on December 26th, 2014 at the National Gallery of Art
11. Still Life with Oranges, Lemons and Blue Gloves
Painted in January 1889
Saw in Washington, DC on December 26th, 2014 at the National Gallery of Art
12. Young Girl Standing Against a Background of Wheat
Painted in June 1890
Saw in Washington, DC on December 26th, 2014 at the National Gallery of Art
Friday, December 26, 2014
Van Gogh
Today, December 16th 2014 I saw 7 Van Gogh's at the National Gallery of Art in Washington DC.
Thursday, December 11, 2014
Golden Girls Gets It
Earlier this year I came across the Golden Girl episodes where Blanche started getting really sick and couldn't find a doctor to listen to her and help her. I joked with mom that it was Lyme, because that's how all of us Lyme patients feel; going to doctors and them telling us we aren't sleeping enough or it's all in our head. It turned out she had chronic fatigue syndrome which, funny, Lyme is commonly misdiagnosed as. I remember the episodes made me cry because she was going through the same thing I had been for 11 years.
Today someone posted this video on Facebook. I actually don't remember seeing this part in any of the episodes, but I'm glad someone's found it and posted it. This clip made me smile, laugh and then cry like a baby. Thank you Extra Lymey for posting it on facebook. Definitely made my day.
Today someone posted this video on Facebook. I actually don't remember seeing this part in any of the episodes, but I'm glad someone's found it and posted it. This clip made me smile, laugh and then cry like a baby. Thank you Extra Lymey for posting it on facebook. Definitely made my day.
Labels:
Golden Girls,
Lyme
Tuesday, December 9, 2014
Jury Duty
Today I had my first time doing jury duty. I was nervous because my cognitive issues cause me not to understand things easily. Honestly I did want to do it, I thought it would be near, but I was really second guessing myself and my ability to understand certain issues. I even had a problem understanding the brief explanation of the case, which is the point that I realized I shouldn't be on the jury. Luckily I got off because I knew one of the witnesses.
Something really upset me though during Jury Duty. Of course, everyone that was in the jury pool was complaining about being there, being out of work, etc. Before we even got started the woman sitting in front of me handed over a letter to the clerk of courts, and was immediately excused. Immediately the people sitting behind me started saying "oh she's so lucky." "I wonder who she knows to get out of it". "Aw, come on, she can get off that easy? That's bull shit." "I wish I had that letter." The letter the woman had was from the hospice, stating that a family member was in the hospice dying. I was so pissed off at the people for saying what they said. I know they more than likely weren't paying attention and didn't see the letter head (bright red and giant from the nationally recognized hospice), or they were too busy saying how lucky she was to hear the clerk of courts say "I'm so sorry you and your family are going through such a horrible time during the holidays." --Even though when the clerk said this it was audible enough for the whole room to hear. People just don't think, and in their ignorant rude rants, they stated loud enough for this poor woman to hear that they'd rather have a family member die than to serve a couple days on a jury. I was really upset, and I should have turned around and said something to those people, but I'm not as assertive as I wish to be.
I've recently been having an issue with the things people have been saying on facebook. I can't stand it when people are complaining about the silly things. Their lives are so simple (void chronic illness) and they should really appreciate it. I wish I could be more assertive and tell people that, 'hey. so what if the grocery store ran out of bananas, life isn't over.' Or when people complain about having a headache, yeah that sucks, but I had a migraine for every day for 7 or 8 years. I know these things suck for people who don't have to deal much, but they should look at themselves from a distance and see that their lives aren't that bad. I know I'm guilty of complaining, of course I am. But I'm very aware that there are people out there who are worse than I am. I always attempt to find the silver lining in stuff. I try not to complain publicly about petty stuff. Everyone complains, but I guess what really gets me is the serial complainers, where that's all they talk about. I probably sound very hypocritical to people, but please, if you think that, go back through my status updates on facebook; the only complaint that's on there is that I had another bullseye rash appear. I don't complain about petty things, because I know they are just that, petty.
Something really upset me though during Jury Duty. Of course, everyone that was in the jury pool was complaining about being there, being out of work, etc. Before we even got started the woman sitting in front of me handed over a letter to the clerk of courts, and was immediately excused. Immediately the people sitting behind me started saying "oh she's so lucky." "I wonder who she knows to get out of it". "Aw, come on, she can get off that easy? That's bull shit." "I wish I had that letter." The letter the woman had was from the hospice, stating that a family member was in the hospice dying. I was so pissed off at the people for saying what they said. I know they more than likely weren't paying attention and didn't see the letter head (bright red and giant from the nationally recognized hospice), or they were too busy saying how lucky she was to hear the clerk of courts say "I'm so sorry you and your family are going through such a horrible time during the holidays." --Even though when the clerk said this it was audible enough for the whole room to hear. People just don't think, and in their ignorant rude rants, they stated loud enough for this poor woman to hear that they'd rather have a family member die than to serve a couple days on a jury. I was really upset, and I should have turned around and said something to those people, but I'm not as assertive as I wish to be.
I've recently been having an issue with the things people have been saying on facebook. I can't stand it when people are complaining about the silly things. Their lives are so simple (void chronic illness) and they should really appreciate it. I wish I could be more assertive and tell people that, 'hey. so what if the grocery store ran out of bananas, life isn't over.' Or when people complain about having a headache, yeah that sucks, but I had a migraine for every day for 7 or 8 years. I know these things suck for people who don't have to deal much, but they should look at themselves from a distance and see that their lives aren't that bad. I know I'm guilty of complaining, of course I am. But I'm very aware that there are people out there who are worse than I am. I always attempt to find the silver lining in stuff. I try not to complain publicly about petty stuff. Everyone complains, but I guess what really gets me is the serial complainers, where that's all they talk about. I probably sound very hypocritical to people, but please, if you think that, go back through my status updates on facebook; the only complaint that's on there is that I had another bullseye rash appear. I don't complain about petty things, because I know they are just that, petty.
Labels:
jury duty
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